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Rapport annuel- registre belge des maladies neuromusculaires 2015

better in the north than in the south of the country. This is presumably due to the geographical repartition of the reference centers collecting the data. Nevertheless, the gap between those two regions ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

building the registry have improved its quality, albeit the consistent gap in data from the south of the country prevails, influencing the estimated prevalence of these diseases. To this day, the true burden ...

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