Zoekresultaten - 3 results

Resilient health systems: harnessing health information to improve population health

and federal health policies, based on sometimes poor scientific findings. However, when the crisis progressed, numerous national and international initiatives were set up aiming to harmonize the ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

TREAT- NMD (a global alliance with the mission of improving trial readiness for neuromuscular diseases) and the Marigold Foundation held a workshop of key opinion leaders to agree a minimal dataset for ...

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