Zoekresultaten - 3 results
Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects
Publication Type: Popular-science publication (vulgarising publication) Authors: Annabelle Calomme Source: Newsletter, Sciensano, Brussels, Belgium (2024) Keywords: OD4RD Orphanet Rare diseases Health Topics: Rare diseases Maladies rares Zeldzame ziekten ...
Annual report Belgian Cystic Fibrosis Registry 2016
Fibrosis Abstract: This report presents the data collected in 2016. It is our hope that the analysis of the registry data will provide readers with information on various aspects of CF and continue to ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
of direct costs. CONCLUSIONS: Haemophilia represents both an economic and health burden, especially regarding individual health on an individual patient level. Initiatives to counteract this burden ...