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Zoekresultaten - 67 results

An international outbreak of Salmonella enterica serotype Enteritidis linked to eggs from Poland: a microbiological and epidemiological study.

a case-control study including confirmed and probable cases and controls randomly sampled from the population registry (frequency matched by age, sex, and postal code). Odds ratios (OR s) for exposure rates ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Volume 13, Issue 1 (2018) Keywords: Clinical trials Myotonic dystrophy REGISTRIES Trial readiness Abstract: BACKGROUND: Myotonic Dystrophy is the most common form of muscular dystrophy in adults, affecting ...

Moving towards a comprehensive diabetes data registry

London, p.1 (2018) URL: https://issuu.com/government.gazette/docs/government_gazette_-_2018_-_vol_3 Keywords: Diabetes registry Abstract:- Health Topics:  Suikerziekte Quality of healthcare Qualité des ...

The effect of enteral tube feeding in cystic fibrosis: A registry based study.

fibrosis (CF) remains equivocal. METHODS: A Belgian CF registry based, retrospective, longitudinal study, evaluated the pre- and post- ETF (n = 113) clinical evolution and compared each patient with 2 age, ...

What can the CF registry tell us about rare CFTR-mutations? A Belgian study.

in CF-disease liability is hardly documented. METHODS: Belgian CF-Registry 2013 data were analyzed to identify CF with at least 1 RM (CF + RM). Clinical data and sweat chloride of CF + RM were compared ...

Effect of allergic bronchopulmonary aspergillosis on FEV1 in children and adolescents with cystic fibrosis: a European Cystic Fibrosis Society Patient Registry analysis.

Body Mass Index Child Cystic Fibrosis Female Forced Expiratory Volume Humans Longitudinal Studies Male REGISTRIES Sex Distribution Abstract: OBJECTIVE: To evaluate the effect of allergic bronchopulmonary ...

Rapport annuel- registre belge des maladies neuromusculaires 2015

D/2017/2505/08 Keywords: BNMDR Maladies neuromusculaires registre Abstract: The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the ...

Jaarverslag Belgisch register van neuromusculaire aandoeningen (BNMDR) 2015

D/2017/2505/09 Keywords: BNMDR neuromusculaire ziekten Register Abstract: The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the diseases ...

Does newborn screening influence the young cystic fibrosis cohort included in national registries?

Publication Type: Peer reviewed scientific article Authors: De Boeck, Kris; Munck, Anne; de Monestrol, Isabelle; Gulmans, Vincent; Lemonnier, Lydie; Middleton, Peter G; Simeon Wanyama; Muriel Thomas Source: Eur Respir J, Volume 49, Issue 1 (2017) Health T ...

Defining a European diabetes data dictionary for clinical audit and healthcare delivery: core standards of the EUBIROD project

providing the foundation for the EUBIROD data analysis repository, also used to implement the diabetes registry and model of care for Cyprus. CONCLUSIONS: The development of data dictionaries and standards ...

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