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Orphanet vertaling: activiteitenrapport (2018-2019)

Number: D/2020/14.440/92; D/2020/14.440/94; D/2020/14.440/93 Keywords: Orphanet Rare diseases Health Topics:  Rare diseases Maladies rares Zeldzame ziekten Manuscript versions:  File:  Version:  Published ...

Annual Report Belgian Cystic Fibrosis Registry 2017

2014. Thanks to improved disease management and novel treatments, the life expectancy and the quality of life of patients with CF has improved significantly when compared to CF cohorts a decade or two ...

The Belgian Cystic Fibrosis Registry- Facts and highlights 2017

Publication Type: Popular-science publication (vulgarising publication) Authors: Simeon Wanyama; Murielle Thomas; Géraldine Daneau Source: (2019) Keywords: Cystic Fibrosis mucoviscidose Health Topics:  Cystic fibrosis Cystische fibrose Fibrose cystique Se ...

Listeria surveillance in Belgium

a consequence of active prevention campaigns targeting pregnant women. However, in 2018 a relatively high number of 11 MN cases were reported. In Belgium, listeriosis is a notifiable infectious disease, and ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Richard Roxburgh; Benedikt Schoser; Sonia Segovia; Andriy Shatillo; Simone Thiele; Ivailo Tournev; Baziel van Engelen; Stanislav Vohanka; Hanns Lochmüller Source: Orphanet J Rare Dis, Volume 13, Issue ...

Risk factors and impact of allergic bronchopulmonary aspergillosis in Pseudomonas aeruginosa-negative CF patients.

Publication Type: Peer reviewed scientific article Authors: Frans De Baets; Linde De Keyzer; Sabine Van Daele; Petra Schelstraete; Stephanie Van Biervliet; Eva Van Braeckel; Muriel Thomas; Simeon Wanyama Source: Pediatr Allergy Immunol (2018) Keywords: al ...

Subcutaneous Granulomatous Inflammation due to Basidiobolomycosis: Case Reports of 3 Patients in Buruli Ulcer Endemic Areas in Benin.

Conclusion: Basidiobolomycosis is a rare subcutaneous fungal disease mimicking preulcerative Buruli ulcer. We stress the importance of the early recognition by clinicians and pathologists of this treatable ...

The Belgian Cystic Fibrosis Registry- Facts and highlights 2016

Publication Type: Popular-science publication (vulgarising publication) Authors: Simeon Wanyama; Muriel Thomas Source: p.8 (2018) Keywords: Cystic Fibrosis highlights Health Topics:  Fibrose cystique Cystic fibrosis Cystische fibrose Service:  Étude des s ...

Le registre belge de la mucoviscidose- Faits et chiffres 2016

Publication Type: Popular-science publication (vulgarising publication) Authors: Simeon Wanyama; Muriel Thomas Source: p.8 (2018) Health Topics:  Fibrose cystique Cystic fibrosis Cystische fibrose Service:  Étude des soins de santé Gezondheidszorgonderzoe ...

Belgisch mucoviscidose register- Feiten en cijfers 2016

Publication Type: Popular-science publication (vulgarising publication) Authors: Simeon Wanyama; Muriel Thomas Source: p.8 (2018) Health Topics:  Fibrose cystique Cystic fibrosis Cystische fibrose Service:  Étude des soins de santé Gezondheidszorgonderzoe ...

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