Zoekresultaten - 6 results

Healthy Data, an online citizen consultation about health data reuse – intermediate report

beneficence, as they perceive it as beneficial at a societal level but also as potentially dangerous. Several aspects seem to have a major impact on their preferences. First, commercial aspects have a major ...

Strategy and Performance Evaluation of Low-Frequency Variant Calling for SARS-CoV-2 Using Targeted Deep Illumina Sequencing

caused by SARS-CoV-2, constitutes a tremendous global health issue. Continuous monitoring of the virus has become a cornerstone to make rational decisions on implementing societal and sanitary measures to ...

Citizens’ perception of and engagement with health data secondary use and sharing in Europe – a literature review

is more debated, as is the question of how to determine societal benefits. Authors suggest several criteria to evaluate the public interest of a project, including the public nature of the projected ...

The Belgian DNA Debate: An Online Deliberative Platform on the Ethical, Legal, and Social Issues of Genomics

online DNA debate was organised, where 1,127 citizens contributed to its deliberative platform. Results: Contributors expressed a dual attitude towards the societal use of genomic information throughout ...

My DNA, whose business is it anyway? A Citizen Forum on the Societal Impact of Genomics

Publication Type: Conference Paper Authors: Wannes Van Hoof; Chloé Mayeur Source: EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE CAMPUS, 4 CRINAN ST, LONDON, N1 9XW, ENGLAND, Volume 28, Issue SUPPL 1, p.8- 9 (2020) ISBN: 1018-4813 Category:  A1 FOS Cl ...

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