Zoekresultaten - 3 results

particularity of a registry dedicated to neuromuscular disorders (compared to other health care registries) is that the patients’ population is heterogeneous. Neuromuscular disorders comprise indeed different ...

and regional differences for other patient characteristics. We can conclude that this study offers an initial insight into neuromuscular diseases through reference centres in Belgium. The analyses point ...

patients from 31 different countries. Here, we describe how the TREAT- NMD national patient registries for DMD were established. We look at their continued growth and assess how successful they have been at ...