Zoekresultaten - 4 results
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
Orphanet J Rare Dis, Volume 9 (2014) Keywords: Belgium Blood Coagulation Factors Cohort Studies Cost of Illness Hemophilia A Humans Abstract: BACKGROUND: Haemophilia is a rare hereditary haemorrhagic disease ...
Orphanet België en nationaal register zeldzame ziekten
Publication Type: Scientific poster, presentation or proceeding Authors: Elfriede Swinnen Source: RaDiOrg Algemene Vergadering en Ledendag, NA, Issue RaDiOrg, NA (2013) Keywords: België EN Orphanet ...
Towards a central registry for rare disease patients in Belgium
implementation improve incidence Indicator Indicators IS IT LEVEL measure measures methodology Monitoring need needs Nomenclature ON orphan Orphanet Patient Patient Care patients Planning prevalence public Quality ...
General Practice Care for Patients with Rare Diseases in Belgium. A Cross-Sectional Survey.
(ii) characteristics of one to three most recently seen patients. Rare diseases were matched against Orphanet (www.orpha.net). GP encounter frequency and patients’ age were compared to the total general ...