Zoekresultaten - 5 results

Rapport annuel- registre belge des maladies neuromusculaires 2015

better in the north than in the south of the country. This is presumably due to the geographical repartition of the reference centers collecting the data. Nevertheless, the gap between those two regions ...

How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?

least once over 2 years in 6 national neuromuscular diseases reference centers. Successive Rasch analyses were conducted in order to investigate the scale validity, reliability, consistency across ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

Public Health (WIV- ISP) and the Reference Centres for Neuromuscular Diseases (NMRC) have joint responsibility for “drawing up a national neuromuscular disease registry …with the aim of facilitating ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

living in Belgium may be included in the yearly updated Registry. Basic core data is harvested through a newly designed web application by the six accredited neuromuscular reference centres. In 2010, 3,424 ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

Public Health (WIV- ISP) and the Reference Centres for Neuromuscular Diseases (NMRC) have joint responsibility for “drawing up a national neuromuscular disease registry … with the aim of facilitating ...

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