Zoekresultaten - 10 results

Qualitative study to assess citizens’ perception of sharing health data for secondary use and recommendations on how to engage citizens in the EHDS

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Kenann Menager; James Maddocks; Louise Mathieu; Rosie Richards; Marlies Saelaert; Wannes Van Hoof Source: Sciensano, Brussels, Belgium, p.45 (2023) Keywords: Data Sp ...

Healthy Data, an online citizen consultation about health data reuse – intermediate report

Results: 4.244 citizens completed the interactive quiz and 5.932 ideas about health data reuse were shared on the platform. These contributions were thematically analysed to identify the overall narrative ...

Citizens’ perception of and engagement with health data secondary use and sharing in Europe – a literature review

HP-JA2020-1 Joint Action TEHDAS Abstract: Executive Summary The secondary use and sharing of health data can be beneficial for public health and improve healthcare in multiple ways. However, many challenges of ...

Stakeholders' interviews- citizen engagement in health data secondary use and sharing: Summary report

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Sciensano; NHS Confederation; Health Data Hub Source: p.48 (0) Keywords: AS Data Space Health data Health Data Space Joint Action Abstract: Within the framework of t ...

Guidelines for Independent Lot Release of Vaccines by Regulatory Authorities

document. Testing under inappropriate conditions may generate inaccurate data and lead to misleading decisions. This guideline also highlights the importance of networking and work sharing among NRA s/ NCL ...

The JARC book “Rare Cancer Agenda 2030: Ten Recommendations from the EU Joint Action on Rare Cancers

fostered by networking and should take into account an expected higher degree of uncertainty Patient-physician shared clinical decision-making should be especially valued Appropriate state-of-the-art ...

Final report: MY DNA, EVERYBODY’S BUSINESS? Qualitative analysis of the belgian citizen forum on the use of genomic information

reciprocity are core values that citizens support in the context of genomic data sharing. Citizens identify a range of individual responsibilities in decision making in genomics and accept that societal nudges ...

Pedagogical Toolbox Healthy Data

discussion materials to stimulate deliberation and we give citizens the opportunity to share their opinion and produce their own recommendations. These contributions will be analyzed in depth and form the ...

Pyrrolizidine alkaloids in herbs and related foodstuffs (PASHERBS)

s/ PANO s contribute more than half to the estimated exposure to all 30 PA s/ PANO s by dry herbs.   For the chronic risk assessment, the EFSA CONTAM Panel concluded that all 1,2-unsaturated PA s share ...

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