Search results - 26 results
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
Orphanet J Rare Dis, Volume 9 (2014) Keywords: Belgium Blood Coagulation Factors Cohort Studies Cost of Illness Hemophilia A Humans Abstract: BACKGROUND: Haemophilia is a rare hereditary haemorrhagic disease ...
Orphanet: een portaal voor zeldzame ziekten
Publication Type: Popular-science publication (vulgarising publication) Authors: Elfriede Swinnen Source: Medi-Sfeer, Volume 420, Number 25, p.23- 25 (2013) ISBN: 1372-0600 Keywords: Inserm Orphanet ...
Orphanet België en nationaal register zeldzame ziekten
Publication Type: Scientific poster, presentation or proceeding Authors: Elfriede Swinnen Source: RaDiOrg Algemene Vergadering en Ledendag, NA, Issue RaDiOrg, NA (2013) Keywords: België EN Orphanet ...
Towards a central registry for rare disease patients in Belgium
implementation improve incidence Indicator Indicators IS IT LEVEL measure measures methodology Monitoring need needs Nomenclature ON orphan Orphanet Patient Patient Care patients Planning prevalence public Quality ...
General Practice Care for Patients with Rare Diseases in Belgium. A Cross-Sectional Survey.
(ii) characteristics of one to three most recently seen patients. Rare diseases were matched against Orphanet (www.orpha.net). GP encounter frequency and patients’ age were compared to the total general ...
Présentation générale des activités d'Orphanet et des contributions possibles par les professionnels de la santé et le grand public à Orphanet Belgium
Keywords: Orphanet database Rare diseases Abstract: On February 27, 2019, the Orphanet Belgium team participated in the conference for all audiences “Belgian actions around rare diseases” organized by the ...