The burden of cystic fibrosis in Belgium: a registry-based study

Last updated on 14-2-2019 by Brecht Devleesschauwer

Public Access

Published

Dissertation

English

Abstract:

Background: Cystic fibrosis is the most common life-limiting autosomal recessive disease among people of European heritage. This rare disease is known to cause substantial distress on patient level. However, the specific impact on individual health as well as the national impact on public health remains to be elucidated. The aim of this dissertation is to quantify and elaborate the disease burden of cystic fibrosis in Belgium. Methodology: The Belgian Cystic Fibrosis Registry provides data concerning cystic fibrosis patients in Belgium. These data are used as the primary input to calcu…

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