Citizens’ perception of and engagement with health data secondary use and sharing in Europe – a literature review

Last updated on 15-2-2023 by Pauline De Wurstemberger

Public Access


Sci. report, recommendat°, guidance doc., directive, monograph




Executive Summary The secondary use and sharing of health data can be beneficial for public health and improve healthcare in multiple ways. However, many challenges of different nature arise when health data is being processed. The role of citizens in the processing of health data seems to be increasingly acknowledged at the European political level. Nonetheless, the only form of citizen’s involvement that seems to exist in the legislation is the pre-requirement for consent. This exploratory literature review aims at deepening our knowledge on citizens’ perceptions of and involvement with t…

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