Identification of rare disease codes in ICD-9-CM and exploration of Belgian Minimal Hospital Data

Last updated on 22-8-2019 by Anonymous (not verified)

Scientific poster, presentation or proceeding



For financial reimbursement, Belgian hospitals need to comply with compulsory registration of the Minimal Hospital Data (MHD). These comprise various data on all hospital admissions at patient level. Our ultimate goal is to query this comprehensive repository to answer various health care related questions in the area of rare diseases (80% of which are genetic diseases). Unfortunately, such analyses are hampered by lack of a suitable codification/classification system in the hospital information systems. Although efforts are being made to introduce the ORPHA rare disease codes, diagnostic i…

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