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Contextual factors influencing the equitable implementation of precision medicine in routine cancer care in Belgium
Keywords: Belgium budgets cancer cancer care facilities contextual factors Demography economics ethics genomicsn health expenditures medical oncology health care systems Precision Precision Medicine privacy ...
BY-COVID D5.1 Enriched report viral variants and health outcomes
questions in a privacy-preserving way, while tackling challenges at different layers of interoperability (legal, organisational, semantic, technical). This flexible workflow can evolve with new data types ...
HealthDCAT-AP – A DCAT Application Profile for the description of health datasets “Recommendations on further development and deployment for possible EU-wide uptake”
advancing research, and informing policy-making across the EU, all while upholding stringent data protection and privacy standards. This document is the second and final deliverable of Work Package 6 of the ...
HealthDCAT-AP Specifications
health data across Europe. It aligns with European standards for data privacy and security and specifically addresses the challenges and obstacles for the secondary use of health data—data repurposed from ...
Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium
availability of a national register number was an asset for HIS link. Policy-makers and researchers must take initiatives to find a better balance between the right to privacy of respondents and society’s right ...
Federated causal inference based on real-world observational data sources: application to a SARS-CoV-2 vaccine effectiveness assessment.
address federated cross-national policy-relevant causal research questions based on sensitive population, health and care data in a privacy-preserving and interoperable way. The methodology and derived ...
Building an ethical and democratic framework for genomic data governance in Can.Heal
Keywords: public engagement; genomic data reuse; privacy; cancer Abstract: CAN. HEAL rassemble l’expertise de 17 pays européens afin d’améliorer la prévention, le diagnostic et le traitement du cancer en ...
Social inequalities and long-term health impact of COVID-19 in Belgium: protocol of the HELICON population data linkage
prohibited from gaining additional knowledge on the study subjects by the Belgian Information Security Committee’s interpretation of the Belgian privacy framework. Health Topics: Health Information System ...
Healthy Data, an online citizen consultation about health data reuse – intermediate report
actors can be beneficial in multiple ways, a strong majority shares their concerns regarding their involvement within health data reuse. Participants referred to the need to protect their privacy and to ...
Gezonde gegevens, een online burgerconsultatie over het hergebruik van gezondheidsgegevens – tussentijds rapport
wezen op de noodzaak om hun privacy te beschermen en de technologische beperkingen van gegevensbeveiliging te erkennen. In dit verband was anonimisering het meest genoemde concept binnen de raadpleging, ...