Search results - 18 results
A citizen-centred approach to public engagement on the ethical, legal and societal issues of health technologies
Publication Type: Peer reviewed scientific article Authors: Chloé Mayeur; Heidi Carmen Howard; Wannes Van Hoof Source: Public Understanding of Science (2025) Keywords: citizen-centred ethics health ...
How to Deal with Uninformed and Poorly Informed Opinions of Citizens? A Critical Approach to Online Public Engagement
Publication Type: Peer reviewed scientific article Authors: Chloé Mayeur; Heidi Mertes; Wannes Van Hoof Source: Citizen Science: theory and Practice (2024) Keywords: education ethics of research ...
Policy brief Belgian EBCP Mirror Group- patient and citizen engagement
Publication Type: Peer reviewed scientific article Authors: Van Hoof, Wannes; Schittecatte, Gabrielle; the Thematic Working Group on Patient & Citizen Engagement Source: Archives of Public ...
Expanding citizen engagement in the secondary use of health data: an opportunity for national health data access bodies to realise the intentions of the European Health Data Space
Citizen engagement European Health Data Space Health data Health information Secondary use Abstract: The European Health Data Space (EHDS) aims to make the primary use of health data for healthcare ...
Citizen-centred approach to public engagement on the ELSI of health technologies
define the citizen-centred approach as the empowerment of citizens by focusing on their perspectives (e.g. values, concerns, needs, and experience) and considering them as equal partners, as far as is ...
COVID-19 pandemic response in the Meuse-Rhine Euroregion: methods, participation and recommendations of a longitudinal cross-border study
informed decision making processes when dealing with borderless health threats such as pandemics, and thus help minimize the negative health effects for its citizens. To examine the pandemic response over ...
Qualitative study to assess citizens’ perception of sharing health data for secondary use and recommendations on how to engage citizens in the EHDS
(Work Package 8) and presents citizen recommendations on how they want their data to be used and their desired role in the future European Health Data Space (EHDS). The recommendations summarise the key ...
Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement
genomic passport Abstract: Since genomics is becoming commonplace in healthcare for the diagnosis, treatment, and prevention, the prospect of generating a genomic passport for all citizens is gaining ...
Healthy Data, an online citizen consultation about health data reuse – intermediate report
gathered through a pilot public econsultation conducted between December 2021 and May 2022, primarily in France, Belgium and the UK, in order to develop citizen inspired recommendations regarding the reuse ...
Citizens’ perception of and engagement with health data secondary use and sharing in Europe – a literature review
political level, through the allowance of a seat in governance bodies or access committees of databases, to the creation of data cooperatives, in which citizens are at the centre of the decision-making ...