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A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Methods A literature strategy was developed for peer-review search in Embase and Medline, and also performed on grey literature databases and population health and/or rare disease-focused websites. We ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
direct and indirect haemophilia-related costs was expressed in euros. Data were drawn from the literature if none were available from federal institutions or health insurance. Disability weights for DALY ...