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Belgian neuromuscular diseases registry, information brochure for patients, 2020

neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...

Is there evidence for correct diagnosis in cystic fibrosis registries?

Regulator Diagnostic Errors Europe Female Humans Male middle aged REGISTRIES Young adult Abstract: BACKGROUND: Cystic fibrosis (CF) spans a wide spectrum. Therefore, benchmarking between registries implies ...

Who is reported in the Belgian, Dutch and French CF registries.

Cystic Fibrosis Conference, NA, Issue European Cystic Fibrosis, NA (2012) Keywords: Belgian conference Cystic Fibrosis European Fibrosis IS REGISTRIES Registry WHO Abstract: Not available Health Topics:  ...

Social challenges facing the cystic fibrosis patients in Belgium on their path to adulthood.

Belgium challenge conference Cystic Fibrosis European Fibrosis IS ON Patient patients REGISTRIES Registry SOCIAL WHO Abstract: Not available Health Topics:  Health and disease monitoring Surveillance de la ...

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