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Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Belg, Volume 115, Issue 2, p.97-104 (2015) Keywords: Adult Belgium cross-sectional studies Female Humans Male middle aged Neuromuscular Diseases Online Systems prevalence Rare diseases REGISTRIES ...
The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia
Institute IS journal Medicine Muscular Dystrophies Muscular dystrophy national Network Neuromuscular disease Neuromuscular Diseases ON organization outcome outcomes Patient Patient registry patients ...