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A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Transparent Health Estimates Reporting (GATHER) statement to assess the quality of reporting of the included studies. The data synthesis depicted the studies’ characteristics, their distribution by geographic ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...