Search results - 3 results
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Group was established in 2017 specifically to develop collaborations amongst TREAT- NMD DM registries. The aim of this study was to further develop the TREAT- NMD Global Registry Network by highlighting ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
patients with a neuromuscular disorder were registered. The most prevalent disease group in the Registry is Hereditary Motor and Sensory Neuropathy, as similarly stated by other studies, albeit the ...
Quantifying the changes in activity level of neuromuscular patients using the ACTIVLIM questionnaire: A 5-years study
den Bergh; S. Paquay; L. Servais; A. Maertens de Noordhout; J. Haan; L. De Meirleir; G. Remiche; N. Deconinck; C. Arnould; BNMDR study group Source: 12th ISPRM World Congress (2018) Keywords: Activity ...