Search results - 15 results
A retrospective, non-interventional cohort study to compare adults with SMA receiving risdiplamwith untreated patients: Study design.
Publication Type: Scientific poster, presentation or proceeding Authors: Simpson, A.; Batech, M.; Carmona, A.; Lee, S.; Poll, A.; Edwards, S.; Guittari, C.; Sutherland, C.; Marini-Bettolo, C.; Walter, M.; Marlène Jagut; Haberlová, J.; Hodgkinson, V.; Yiu, ...
International collaboration to improve knowledge on myotonic dystrophy type 2
myotonic dystrophy type 2 (DM2), which aims to facilitate collaborative research and clinical trials. Objectives: This study aimed to assess DM2 patients included in the network, and to analyse their ...
Belgian neuromuscular diseases registry (BNMDR): Annual report 2017
evaluating the importance of neuromuscular diseases and patient characteristics, to promote health services for patients with a neuromuscular disease, to provide information to public health authorities for ...
Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015
autorités de santé publique pour la gestion de la convention et la planification des soins, et de faciliter le recrutement de patients pour la recherche sur les nouveaux traitements. Depuis la création du ...
Rapport annuel- registre belge des maladies neuromusculaires 2015
diseases and the patient characteristics, to provide information to the public health authorities for planning of health care in Belgium, to promote health services for patients having a neuromuscular ...
How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?
Disorders, Volume 26, Issue 3 (2016) Keywords: Activity limitations Neuromuscular Diseases Patient-reported outcome measure Rasch analysis Abstract: This study aims to investigate the clinimetric properties of ...
Brochure d'information pour les patients | Registre belge des maladies neuromusculaires (BNMDR)
Publication Type: Popular-science publication (vulgarising publication) Authors: Corinne Bleyenheuft Source: Institut Scientifique de Santé Publique, Bruxelles (0) Keywords: BNMDR Maladies neuromusculaires Health Topics: Maladies neuromusculaires Neuromu ...
Information brochure for patients | Belgian Neuromuscular Disease Registry (BNMDR)
Publication Type: Popular-science publication (vulgarising publication) Authors: Corinne Bleyenheuft Source: Scientific Institute of Public Health, Brussels (0) Keywords: BNMDR Neuromuscular Diseases Health Topics: Maladies neuromusculaires Neuromuscular ...
Registre belge des maladies neuromusculaires (BNMDR) 2014 | Résultats et tendances depuis 2010
s’inscrit dans le cadre de la convention de rééducation relative à la prise en charge de patients souffrant de maladies neuromusculaires (MNM). Depuis le 1er janvier 2008, l’Institut Scientifique de Santé ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010
Belgium (NIHDI) and comes under the rehabilitation convention relating to the care of patients suffering from neuromuscular diseases (NMD). Since the first of January 2008, the Scientific Institute for ...