Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Last updated on 5-1-2021 by Pierre Daubresse

Scientific poster, presentation or proceeding



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Treat-NMD is an international collaboration aimed at bringing treatments to people with neuromuscular diseases. The TREAT-NMD Myotonic Dystrophy Working Group was established in 2017 specifically to develop collaborations amongst TREAT-NMD DM registries. The aim of this study was to further develop the TREAT-NMD Global Registry Network by highlighting the registries that are affiliated and full members of TREAT-NMD and to explore the strengths and weaknesses of the collaboration.

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