Stakeholders' interviews - citizen engagement in health data secondary use and sharing: Summary report

Last updated on 8-11-2023 by Marie Malingreau

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Sci. report, recommendat°, guidance doc., directive, monograph



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Within the framework of their participation in the Joint Action “Towards a European Health Data Space”, the Health Data Hub, Sciensano and the NHS Confederation conducted 53 semi-structured interviews with stakeholders from their national health data ecosystem. The interviewees were asked about two main topics: their experiences, perceptions, and needs and expectations regarding data, particularly from a European perspective; their knowledge and projection of the perceptions and role that citizens could play in the governance of a European health data space. The results will feed into the c…

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