Résultats de la recherche - 13 results
A European perspective on incidental and secondary findings
Keywords: ethics public engagement public health genomics Abstract: / Service: Data management Data management Data management Full text language: French Category: C31 FOS Classification: 3.03 Health ...
How to Deal with Uninformed and Poorly Informed Opinions of Citizens? A Critical Approach to Online Public Engagement
Genomics public engagement uninformed opinion Abstract: Public engagement is increasingly recognized as a mutual learning of perspectives between lay and expert stakeholders. Still, the intention to educate ...
Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement
an online citizen engagement on genomic information usage, including a question on a genomic passport for all. The inductive thematic analysis of participants’ contributions highlighted vulnerability ...
How do citizens experience vulnerability in genomics?
vulnerability; public engagement Abstract: In the context of healthcare, and more specifically in genomics, the concept of vulnerability has been studied principally for particularly vulnerable groups and from the ...
Implémenter les recommandations des citoyens sur les données génomiques: Vers une éthique de l’engagement public
; recommendation; genomics; ethics Abstract: La génomique compte parmi les thématiques majeures abordées lors d’initiatives d’engagement du public, en raison de son influence grandissante au sein et en dehors des ...
Belgian citizens’ attitudes towards genomic data sharing. Results of the online DNA debate
genomics; public engagement Abstract: Medicine, genealogical, dietary, sports training and prevention services increasingly use genomic data. Hence, everyone may likely be confronted directly or indirectly ...
Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information
Publication Type: Peer reviewed scientific article Authors: Chloé Mayeur; Wannes Van Hoof Source: Health Expectations, Volume 24, Issue 2 (2021) Keywords: citizen participation genomic data ...
The genome as individual property or common good. Conceptualization of the genome within a citizen forum
ENGLAND, Volume 28, Issue SUPPL 1, Online, p.87- 88 (2020) ISBN: 1018-4813 Keywords: genomic; public engagement; citizen forum; common good; property Abstract: In recent years, policymakers and experts ...
Do international recommendations meet citizens’ values and needs regarding genomic information?
Keywords: genomics; public engagement; citizen forum; privacy; discrimination; autonomy Abstract: Genomics will impact the lives of many citizens, as it grows more and more important and even spreads beyond ...
Benefits of genomics in the risk assessment of genetically modified plants for human consumption
Publication Type: Scientific poster, presentation or proceeding Authors: Willems,S.; Sigrid C.J. De Keersmaecker; Philippe Herman; Nancy Roosens; Global Engage Source: 2nd Plant Genomics Congress ...