Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information

Last updated on 3-10-2023 by Marie Malingreau

Public Access


Peer reviewed scientific article



Background: The development of large data sets, including genomic data, coupled with rapid advances in personalized medicine where citizens increasingly face complex choices about the use of their genomic information implies that citizens are essential stakeholders in genomics. They should be engaged in the ethical, legal and societal issues to produce a framework that fosters trust and allows them to guide the technology based on their values. Objective: This article highlights that citizens’ conceptions of the human genome inform about and make sense of their main values rega…

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