- Vouliez-vous dire
- public engagement; recommendations; genomics; ethical
Résultats de la recherche - 6 results
Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement
traction. While this would have many advantages, it raises ethical issues requiring societal debate alongside academic reflection. Hence, Sciensano—the Belgian scientific Institute of Public Health—organised ...
Implémenter les recommandations des citoyens sur les données génomiques: Vers une éthique de l’engagement public
recommendation; genomics; ethics Abstract: La génomique compte parmi les thématiques majeures abordées lors d’initiatives d’engagement du public, en raison de son influence grandissante au sein et en dehors des ...
Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information
about the use of their genomic information implies that citizens are essential stakeholders in genomics. They should be engaged in the ethical, legal and societal issues to produce a framework that ...
The genome as individual property or common good. Conceptualization of the genome within a citizen forum
ENGLAND, Volume 28, Issue SUPPL 1, Online, p.87- 88 (2020) ISBN: 1018-4813 Keywords: genomic; public engagement; citizen forum; common good; property Abstract: In recent years, policymakers and experts ...
Do international recommendations meet citizens’ values and needs regarding genomic information?
Keywords: genomics; public engagement; citizen forum; privacy; discrimination; autonomy Abstract: Genomics will impact the lives of many citizens, as it grows more and more important and even spreads beyond ...
Can.Heal Deliverable 12.2 – Citizen and Patient Perspectives on Oncogenomic Data Reuse
/ Keywords: ethics public engagement public health genomics Abstract: This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives ...