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Résultats de la recherche - 2 results
Lutter contre l'invisibilité des maladies rares grâce à la nomenclature Orphanet
the “Midis des Maladies Rares” (lunchtime conferences on rare diseases) organised each year by the CUSL Rare Diseases Institute as part of the activities organised for Rare Disease Day. Her ...
Présentation générale des activités d'Orphanet et des contributions possibles par les professionnels de la santé et le grand public à Orphanet Belgium
Keywords: Orphanet database Rare diseases Abstract: On February 27, 2019, the Orphanet Belgium team participated in the conference for all audiences “Belgian actions around rare diseases” organized by the ...