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Belgian neuromuscular diseases registry (BNMDR): Annual report 2017

patients were registered, resulting in a Belgian prevalence estimate of 50.8 neuromuscular patients per 100,000 population. Patients’ recruitment was better in the north than in the south of the country. ...

Rapport annuel- registre belge des maladies neuromusculaires 2015

particularity of a registry dedicated to neuromuscular disorders (compared to other health care registries) is that the patients’ population is heterogeneous. Neuromuscular disorders comprise indeed different ...

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

POPULATION prevalence protein Rare disease REGISTRIES Registry successful Therapy UK utilization Abstract: Duchenne muscular dystrophy (DMD) is an X-linked genetic disease, caused by the absence of the ...

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