Rapport annuel - registre belge des maladies neuromusculaires 2015

Last updated on 23-8-2019 by Anonymous (non vérifié)

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Sci. report, recommendat°, guidance doc., directive, monograph




The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the diseases and the patient characteristics, to provide information to the public health authorities for planning of health care in Belgium, to promote health services for patients having a neuromuscular disease and to improve recruitment for clinical trials. The patients’ recruitment increases every year since the registry’s creation in 2008. In 2015, a total number of 4670 patients were registered. The particularity of a registry dedicated to neurom…

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