Résultats de la recherche - 4 results
Qualitative study to assess citizens’ perception of sharing health data for secondary use and recommendations on how to engage citizens in the EHDS
the secondary use of their health data and their role in its governance. These citizen recommendations are also informed by the Healthy Data literature review, expert interviews and national and ...
Stakeholders' interviews- citizen engagement in health data secondary use and sharing: Summary report
expectations regarding data, particularly from a European perspective; their knowledge and projection of the perceptions and role that citizens could play in the governance of a European health data space. The ...
Final report: MY DNA, EVERYBODY’S BUSINESS? Qualitative analysis of the belgian citizen forum on the use of genomic information
involvement of the public in the governance of genomic information in society is vital. It ensures that societal norms and values guide the technology and not the other way around. Health Topics: Quality of ...
IPAAC Rapport WP4: Cancer control policy interview survey
screening, the extent of implementation of screening programs varies widely among EU Member States. The most often reported challenges concern test selection, non-appropriate governance and/or legal frameworks ...