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In short
JANE is a Joint Action that will prepare the establishment of seven new EU Networks of Expertise in the cancer field in the following domains: personalised primary prevention; survivorship; palliative care; omic technologies; hi-tech medical resources; complex & poor-prognosis cancer(s); adolescents and young adults (15-39 years at cancer diagnosis) with cancer.
Project summary
The Joint Action has two goals:
- prepare everything necessary to launch the new Networks of Expertise (defining their missions and objectives, studying their design…)
- critically evaluate existing models of current and future EU networks, research infrastructures and platforms, in order to properly shape the new Networks of Expertise.
The project’s goal is to bring about the creation of 7 Networks of Expertise which will have to deliver services to the European cancer community to overcome some crucial oncology challenges. They involve patients, and integrate research and IT solutions into care. The final deliverable for each is a call for expressions of interest. These Networks of Expertise aim at improving EU cancer care networking by reaching out to all relevant (real-world) communities throughout the EU.
One Work Package is assigned to each Network of Expertise. Five Transversal Task Forces and one additional Work Package operate transversally to all the Work Packages, focusing on the following topics: sustainability; integration between EU networking and MSs; integration between information-technology infrastructures, including the use of artificial-intelligence tools; integration between health care and research; the ERN model; patient involvement.
JANE will have achieved its mandate if its sole deliverables, i.e. the new Networks of Expertise, become effective and sustainable in future years. This will be built on previous and ongoing EU networking experiences, especially the existing Expert Reference Networks (ERN) in the cancer field, and on finding solutions rooted in the European oncology community. The Joint Action will be followed by new EU calls dedicated to the implementation of these Networks of Expertise.
The Joint Action gathers 36 partners from 16 European countries.
For this project, Sciensano is involved in the following Work Packages (WP) :
- WP7: Survivorship
- WP8: personalised primary prevention
- WP9: “Omics” technologies (Leader)
- WP10: high tech medical resources
- WP11: AYA (adolescents and young adults)
- Transversal Taskforce 5: Patient involvement (Leader)