Zoekresultaten - 32 results
Un nouvel outil pour les maladies rares: une base de données répertoriant les tests génétiques réalisés en Belgique
ressources externes comme Orphanet, de promouvoir une notification uniforme aux organisations gouvernementales de soins de santé et d’accroître la visibilité de l’expertise de la génétique clinique belge. La BGTD est ...
Orphanet Belgium Team, Highlights in 2024
Publication Type: Scientific poster, presentation or proceeding Authors: Annabelle Calomme; Kim Van Roey Source: Orphanet International Annual Meeting, Orphanet, Issue Orphanet (2024) Health ...
Belgian contribution to Orphanet, the international reference portal on rare diseases and orphan drugs
Sciensano, Brussels, Belgium (2024) Keywords: Orphanet Rare diseases Health Topics: Weesziekten Maladies orphelines Orphan diseases Service: Étude des soins de santé Gezondheidszorgonderzoek Health services ...
Orphanet Belgium activity report 2023
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Annabelle Calomme Source: Sciensano, Brussels, Belgium, p.70 (2024) Keywords: Orphanet Belgium Orphanet ...
Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects
Publication Type: Popular-science publication (vulgarising publication) Authors: Annabelle Calomme Source: Newsletter, Sciensano, Brussels, Belgium (2024) Keywords: OD4RD Orphanet Rare diseases ...
A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Brecht Devleesschauwer; Juanita A. Haagsma Source: Orphanet Journal of Rare Diseases, Volume 19, Issue 1 (2024) Keywords: Disability-Adjusted Life Years methods population health Rare diseases REVIEW ...
Rapport d'activité Orphanet Belgium 2022
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Annabelle Calomme Source: Sciensano, Bruxelles, Belgique, p.58 (2023) Keywords: base de données Orphanet ...
Orphanet Belgium activity report 2022
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Annabelle Calomme Source: Sciensano, Brussels, Belgium, p.56 (2023) Keywords: Orphanet Belgium database Rare ...
Orphanet Belgium activiteitenrapport 2022
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Annabelle Calomme Source: Sciensano, Brussel, België, p.62 (2023) Keywords: Orphanet Belgium database ...
Orphanet vertaling: activiteitenrapport (2022)
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Kim Van Roey Source: Sciensano, Brussels, Belgium, p.19 (2023) Keywords: Orphanet Rare diseases Service: ...