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- embryonic atrophy type 2
Zoekresultaten - 6 results
International collaboration to improve knowledge on myotonic dystrophy type 2
myotonic dystrophy type 2 non-invasive ventilation pacemaker Registry Abstract: Background: The TREAT- NMD Global Registry Network is a global collaboration of neuromuscular disease registries, including ...
Belgian neuromuscular diseases registry (BNMDR): Annual report 2017
patients suffering from Amyotrophic Lateral Sclerosis (ALS). The ten most prevalent diseases of 2017 were, in order of significance: Hereditary Motor and Sensory Neuropathy, Myotonic Dystrophy type 1, ALS, ...
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
1 (2018) Keywords: Clinical trials Myotonic dystrophy REGISTRIES Trial readiness Abstract: BACKGROUND: Myotonic Dystrophy is the most common form of muscular dystrophy in adults, affecting an estimated 10 ...
Rapport annuel- registre belge des maladies neuromusculaires 2015
the registry are: hereditary motor and sensory neuropathy, myotonic dystrophy type 1, amyotrophic lateral sclerosis, Duchenne muscular dystrophy, hereditary spastic paraplegia, limb girdle muscular ...
Jaarverslag Belgisch register van neuromusculaire aandoeningen (BNMDR) 2015
the registry are: hereditary motor and sensory neuropathy, myotonic dystrophy type 1, amyotrophic lateral sclerosis, Duchenne muscular dystrophy, hereditary spastic paraplegia, limb girdle muscular ...