Zoekresultaten - 35 results
RWD from Sciensano registries
Abstract: /**Not applicable**/ Health Topics: Neuromuscular diseases Maladies neuromusculaires Neuromusculaire aandoeningen Service: Étude des soins de santé Gezondheidszorgonderzoek Health services ...
A retrospective, non-interventional cohort study to compare adults with SMA receiving risdiplamwith untreated patients: Study design.
Neuromusculaire aandoeningen Neuromuscular diseases Maladies neuromusculaires Service: Étude des soins de santé Gezondheidszorgonderzoek Health services research Full text language: English Category: C32 FOS ...
International collaboration to improve knowledge on myotonic dystrophy type 2
Korngut, Lawrence; Marlène Jagut; Schoser, Benedikt; Forbes, Robin; Poll, Annie; Roxburgh, Richard Source: Journal of Neuromuscular Diseases, Volume 11, Issue 6 (2024) Keywords: age at onset ambulation ...
Belgian neuromuscular diseases registry (BNMDR): Annual report 2017
Number: D:2020/14.440/83 Keywords: BNMDR Neuromuscular Diseases Registry Abstract: The goals of the Belgian Neuromuscular Diseases Registry (BNMDR) are: to enable epidemiological research aimed at ...
Belgian NMD registry
neuromuscular diseases registry BNMDR Abstract: This presentation gives a brief overview of the Belgian neuromuscular diseases registry and includes information on the set up, overall numbers, projects ...
Belgian neuromuscular diseases registry, information brochure for patients, 2020
neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
TREAT- NMD (a global alliance with the mission of improving trial readiness for neuromuscular diseases) and the Marigold Foundation held a workshop of key opinion leaders to agree a minimal dataset for ...
Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015
CRNM. Health Topics: Maladies neuromusculaires Neuromuscular diseases Neuromusculaire aandoeningen Service: Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript ...
Rapport annuel- registre belge des maladies neuromusculaires 2015
D/2017/2505/08 Keywords: BNMDR Maladies neuromusculaires registre Abstract: The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the ...