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2024
International collaboration to improve knowledge on myotonic dystrophy type 2, Stojan, Peric, Vukan Ivanovic, Emma-Jayne Ashley, Belen Esparis, Craig Campbell, Stephan Wenninger, Darren Monckton, Chiara Marini-Bettolo, Helen Walker, Stanislav Voháňka, et al. , Journal of Neuromuscular Diseases, Jan-11-2024, Volume 11, Issue 6, (2024)
A retrospective, non-interventional cohort study to compare adults with SMA receiving risdiplamwith untreated patients: Study design., Simpson, A, Batech M., Carmona A., Lee S., Poll A., Edwards S., Guittari C., Sutherland C., Marini-Bettolo C., Walter M., et al. , 4th Scientific International Congress on Spinal Muscular Atrophy, 14/03/2024, Ghent, Belgium, (2024)
RWD from Sciensano registries, Jagut, Marlène, and Cosyns Marjan , PharmAcademy, 20/06/2024, Brussels, Belgium, (2024)
2021
Belgian neuromuscular diseases registry (BNMDR): Annual report 2017, Jagut, Marlène, Doggen Kris, and Cosyns Marjan , 2021, Brussels, Belgium, p.100, (2021)
2020
Belgian neuromuscular diseases registry, information brochure for patients, 2020, Jagut, Marlène, and Cosyns Marjan , Information brochure for patients, 04/2020, Brussel, (2020)
Belgian NMD registry, Cosyns, Marjan, and Jagut Marlène , TGDOC Annual Curators meeting, 02/12/2020, teleconference, (2020)
Belgisch register van neuromusculaire aandoeningen, folder met informatie voor patiënten, 2020, Jagut, Marlène, and Cosyns Marjan , Folder met informatie voor patiënten, 04/2020, Brussel, (2020)
Nusinersen treatment significantly improves hand grip strength, hand motor function and MRC sum scores in adult patients with spinal muscular atrophy types 3 and 4, De Wel, Bram, Goosens Veerle, Sobota Atka, Van Camp Elke, Geukens Ellen, Van Kerschaver Griet, Jagut Marlène, Claes Kathleen, and Claeys Kristl G. , Journal of Neurology, Mar-09-2021, (2020)
Registre belge des maladies neuromusculaires, brochure d'information pour les patients, 2020, Jagut, Marlène, and Cosyns Marjan , Brochure d'information pour les patients, 04/2020, Brussel, (2020)
2019
Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy, Rodrigues, Miriam, Bullivant JoAnne, Hodgkinson Victoria, TREAT-NMD Registry Curators, Jagut Marlène, Straub Volker, Goemans Nathalie, Ambrosini Anna, and Campbell Craig , TREAT-NMD conference, 12/2019, Leiden, The Netherlands, (2019)
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Belgisch register van neuromusculaire aandoeningen: Jaarverslag 2017, Jagut, Marlène, Doggen Kris, and Cosyns Marjan , (0)
Registre belge des maladies neuromusculaires: Rapport annuel 2017, Jagut, Marlène, Doggen Kris, and Cosyns Marjan , (0)

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