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Zoekresultaten - 3 results
Lutter contre l'invisibilité des maladies rares grâce à la nomenclature Orphanet
nomenclature” to approximately 80 physicians and healthcare professionals from the Cliniques Universitaires Saint-Luc (CUSL), one of the eight Belgian Rare Disease Functions. This presentation was given during ...
Présentation générale des activités d'Orphanet et des contributions possibles par les professionnels de la santé et le grand public à Orphanet Belgium
University Hospital of Liège, one of the seven Belgian university hospitals with a “rare diseases function”. An overview of Orphanet’s activities and possible contributions by health professionals and the ...
Annual report Belgian Cystic Fibrosis Registry 2016
percentile has also been declining over the years. The above suggests better nutritional management in the patients. The patient population continues to record an improvement in lung function expressed as the ...