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Zoekresultaten - 2 results
A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Brecht Devleesschauwer; Juanita A. Haagsma Source: Orphanet Journal of Rare Diseases, Volume 19, Issue 1 (2024) Keywords: Disability-Adjusted Life Years methods population health Rare diseases REVIEW ...
An EU task force to assess the burden of rare diseases
Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source: Nat Med, Volume 29, Issue 3, Number 517 (2023) Keywords: Advisory Committees European Union Humans Rare diseases Health Topics: Burden of ...