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Zoekresultaten - 3 results
Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?
diagnosis, clinical evolution and burden of therapy between NBS and clinically diagnosed CF patients. A standardized care program after CF- NBS is needed. Health Topics: Cystic fibrosis Cystische fibrose ...
Annual Report Belgian Cystic Fibrosis Registry 2018
Belgium had no national neonatal screening program at the time. Within the year, sixteen deaths were reported (nine of them among transplanted patients) with age at death ranging from 20.4 to 70.2 years. ...
Annual Report Belgian Cystic Fibrosis Registry 2017
CF are acute or recurrent respiratory problems (42.2%) and failure to thrive (24.4%). About 18.7% were diagnosed via neonatal screening even though Belgium had no national neonatal screening program at ...