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Zoekresultaten - 26 results
Lutter contre l'invisibilité des maladies rares grâce à la nomenclature Orphanet
maladies rares Orphanet Abstract: On February 27, 2025, Annabelle Calomme (Orphanet Belgium, Sciensano) gave a presentation entitled “Fighting against the invisibility of rare diseases thanks to the Orphanet ...
Orphanet Belgium activity report 2023
database Rare diseases Health Topics: Rare diseases Maladies rares Zeldzame ziekten Service: Épidémiologie et santé publique Epidemiologie en volksgezondheid Epidemiology and public health Information ...
Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects
Publication Type: Popular-science publication (vulgarising publication) Authors: Annabelle Calomme Source: Newsletter, Sciensano, Brussels, Belgium (2024) Keywords: OD4RD Orphanet Rare diseases ...
A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Brecht Devleesschauwer; Juanita A. Haagsma Source: Orphanet Journal of Rare Diseases, Volume 19, Issue 1 (2024) Keywords: Disability-Adjusted Life Years methods population health Rare diseases REVIEW ...
Orphanet Belgium Team, Highlights in 2023
Publication Type: Scientific poster, presentation or proceeding Authors: Annabelle Calomme Source: (2023) Health Topics: Weesziekten Maladies orphelines Orphan diseases Maladies rares Zeldzame ...
Orphanet Belgium activity report 2022
diseases Health Topics: Rare diseases Maladies rares Zeldzame ziekten Service: Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript versions: DOI: ...
Orphanet Belgium activiteitenrapport 2022
zeldzame ziekten Health Topics: Rare diseases Maladies rares Zeldzame ziekten Service: Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript versions: DOI: ...
An EU task force to assess the burden of rare diseases
Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source: Nat Med, Volume 29, Issue 3, Number 517 (2023) Keywords: Advisory Committees European Union Humans Rare diseases Health Topics: Burden of ...
Présentation des activités menées par l'équipe maladies rares de Sciensano, y compris la gestion de la base de données Orphanet Belgium
Abstract: On the occasion of Rare Disease Day, Echino-Liège and the National Reference Laboratory for Echinococcosis organized a symposium on February 28, 2023 devoted to alveolar echinococcosis, a rare ...
Rapport d'activité Orphanet Belgium 2021
Keywords: Database Orphanet Rare diseases Health Topics: Rare diseases Maladies rares Zeldzame ziekten Service: Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript ...