Zoekresultaten - 3 results
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
1 (2018) Keywords: Clinical trials Myotonic dystrophy REGISTRIES Trial readiness Abstract: BACKGROUND: Myotonic Dystrophy is the most common form of muscular dystrophy in adults, affecting an estimated 10 ...
The effect of enteral tube feeding in cystic fibrosis: A registry based study.
(CF) remains equivocal. METHODS: A Belgian CF registry based, retrospective, longitudinal study, evaluated the pre- and post- ETF (n = 113) clinical evolution and compared each patient with 2 age, ...
Jaarlijks Rapport Belgisch Mucoviscidose Register 2013.
D/2015/2505/32 Keywords: Belgium Cystic Fibrosis data de Fibrosis mucoviscidose rapport Register REGISTRIES Registry report Abstract: In dit rapport worden de gegevens voorgesteld, verzameld in 2013. We hopen dat ...