Zoekresultaten - 2 results
Orphanet België en nationaal register zeldzame ziekten
Publication Type: Scientific poster, presentation or proceeding Authors: Elfriede Swinnen Source: RaDiOrg Algemene Vergadering en Ledendag, NA, Issue RaDiOrg, NA (2013) Keywords: België EN Orphanet ...
General Practice Care for Patients with Rare Diseases in Belgium. A Cross-Sectional Survey.
(ii) characteristics of one to three most recently seen patients. Rare diseases were matched against Orphanet (www.orpha.net). GP encounter frequency and patients’ age were compared to the total general ...